WE'RE GOING HOME TODAY!

Hello! Here are some fun pictures. The nurses are Nancy and Tina. Our favorite from 7a Cooley. We are leaving today! We are very excited. Rob has been counting down the hours and days for awhile now.=)

Pictures of our Hotel

I thought everyone would love to see our views from the hotel. Aren't they great? It is really nice to have a full kitchen.
Rob is doing well. He slept well last night. Another day of watching tv!

Pampered Rob

Rob gets all the pampering around here! =) Rob ate really well yesterday. So far just mac and cheese so far today. Rob is sitting up and watching car stuff on Mike's computer. So another day of sitting around. Once Rob gets more vicodin we'll be able to do laps around the floor.

The cake

Cake

We had nurse tina stop by today. Tina works on the floor we were just
on but was on vacation. So she was back and stopped in. We had a
Chaplin com in today and somehow she told me about this chocolate
place that is very good. Well we told tina and she told us about
another place that had cake and robs eyes just lit up! He wanted some.
So mike, tina, and I went and got really good cake!
Rob and I were able to leave the floor today and go to the giftshop.
It was fun. He was happy to get out. He has done 4 laps today too.
Sent from my rob's iPhone

Before and After

Rob was able to shower today! The showers here are made for really short people. He managed though. He said it was nice to have warm water on him. He looks so nice and clean now!
Today they put a lidocaine patch on his back. We're hoping it will help numb his back from pain. We'll see. Rob still isn't eating much. They are sending ensure with every meal now.
Rob is making plans on how we can live in Epcot. He is looking at Disney maps right now. Maybe we'll go next year. We love Disney!

This is Mike (Rob's Dad)
I asked Marla if I could post. I give too much information so if you are bored you can all scan through quickly. It seems like we learn a little more each day. Doctor Coselli and his team came in this early morning and said that upon review he feels that Rob may have had a bleed at one of the repair sites in his right subclavian artery. To me that is better news because the radiologist had guessed that if may have been a vein. Dr. Coselli said the artery heals it should strengthen and that makes us feel better. Since the bleed they were keeping Rob so sedated that it was supressing his appetite and his breathing. He is now getting back to pre-operation medications and he is much less comfortable, but he is getting back to being the real Rob. I spent the night with Rob in his new room. He still does not have a voice above a whisper so if he needs a nurse he pushes the call button but they cannot hear what he wants. A little scary - the nurse count is about 5 to 6 patients to one nurse. It is a tought job for the nursing staff. We are all so grateful for the medical community. It is such hard and pressure-filled work. The nurses, personal care attendants, residents, doctors - all of them are so dedicated. We owe so much to all of them.

As I am feeling so grateful I cannot help but share my love for Marla. She is a miracle in our lives. Rob loves her so much and it is so wonderful to see his eyes light up whenever she walks in the room. As we were getting him situated in the intensive care unit upon our arrival here in Texas, Denise and I were exhausted and we were sitting in the ICU and watched as Marla updated the nursing and medical staff on Rob's needs. I told her what a blessing it is to have a loving, wise and caring person to love our son. Marla has understanding and nurturing ways beyond her years. I remember the day Rob first saw Marla at church and told me he just saw the most beautiful girl in the world. Rob is correct. Marla is so precious and beautiful.

Rob walked 4 times around the floor this afternoon. He is struggling to make himself eat and drink. He will need to work hard to eat and drink now to get some volume of food in him- since they just unhooked his venous line for liquid, sleep is still difficult.

Thank all of you for your thoughts and prayers. We feel your support. Thanks, Mike

Sleepy Robbie

Ok So Bri said I need to make this entertaining.. Let's see So Rob is sleeping just like this otter. We're in the new room. We thought it would be quieter but I don't think it is. They are going to take him off dilaudid today. Rob says his head really hurts like Bri is stepping on it.

Moving

We just got word that Rob will be moving soon. Finally =) He's going back to the floor he was on before. Rob has had some food today like one and half tacos, but really hasn't been eating much. We're hoping he'll start eating soon. We're figuring out pain medication right now too. He can't take his dilaudid drip home, so he needs to get off that. He had his femoral line taken out and it didn't bleed as much as we all thought it would.

so far so good

Rob is doing well. He is sleepy. They were able to take his catheter out. He was happy about that! They put a new line in so he will get his femoral line out later today. He will be moved up to a different floor sometime today.

Back to watching HGTV

Hello, Rob is up and watching HGTv. It's great to see his eyes open and alert. He was able to take a few bites of a strawberry sundae. He says his arm really hurts from the procedure this morning. He has to keep it straight to keep the arm from getting a hematoma. He said he wants to be home. I don't blame him. We're in the best place and waiting to here what the plan is.

Waiting...

Here's Kimi and Thunderhorse, just waiting for Rob and Marla to come
back home. Sumi was on the bed, but like a little baby, she ran away
as soon as I walked into the room. Kimi is either really comfortable,
or he's preping a little suprise present for Rob when he gets back home.

Everything good

He just got out. We were told they didn't find any bleeds. His incisions is all intact. It was a vein that tore and seems like it healed up. We're waiting to hear from Dr Coselli, but the news we got is very good! He is pretty groggy from the procedure.

In the aortagram

Rob is in getting the aortagram done. They are going up through his arm. Mike was here early this morning and was able to talk to the huge group that does rounds in the morning. They really want to make sure it's not leaking. They are thinking there is less than 1% of a chance that it is still leaking, but we really won't know until this test is done. We'll see. Rob's neck area and right shoulder area are swollen from the hemotoma. We're hoping we'll finally get some answers today.

We were able to see a lot of nurses we know this morning. We got big hugs from all of them. Rob's nurse is someone he had two years ago and is so good to him. I will update more when I know more. Thanks for all your support!

no aortagram

Today they didn't do the aortagram. We're hoping for tomorrow! Rob is doing ok. They lowered the pain killer he was getting so he is more awake. He has been so groggy the past few days. He wasn't breathing enough and so now with lower pain medication he should be back to breathing better. Well hopefully we'll know more tomorrow. It has been a lot of waiting and waiting and waiting.

Cute Robbie

Rob is eating a little bit. Mike was showing him some fun things on the computer. We still don't know much and we haven't had that test yet. A lot of waiting....

Aortagram

Hello, We just talked to a resident. They are going to do an aortagram today. They will inject a dye and make sure it has stopped bleeding. We're all hoping and praying it has. If it has then it will have healed itself. If it hasn't, then that's a whole different story. We'll know more later (hopefully)

more pictures

 

Blogger finally let me post some pictures! Chococat (cocoa) is holding Rob's button for pain meds. Rob said it was much easier to find. It you look close enough you can tell he has it tied around his legs. It was pretty funny to walk in and see that. 

Pictures

I was telling the pilots how to fly =) 

No news

Just a quick update. We don't know much. We haven't talked to doctors. We haven't seen Dr Coselli. We've heard a few things from nurses on what doctors said. As long as Rob stays stable the more time they will have to make sure they know what's going on. It's also a weekend so pretty much nothing goes on in hospitals... Rob should have the ultrasound tomorrow morning now.  We're unsure if they will do surgery or what. So hopefully tomorrow we'll find out more, but who knows.

Rob hasn't eaten too much. We're hoping he gets more of an appetite tomorrow. Thanks for all your comments and support and prayers. Once again, we need it!