Very difficult visit tonight. Rob had been having a good day when his blood pressure, heart rate and respiration increased dramatically. They said his blood pressure went to 170 and heart rate to 150. They also said his ability to get rid of his carbon dioxide had become very limited. They increased his respirator to maximum and gave him various drugs. At 5 tonight he seemed aware that he had had a real set back. He had written to the nurse that he wanted the phone. We don't know who he planned to call since he cannot speak. We think he was so frustrated that he wanted to call for help. It is difficult to see him with the respirator still in and having this additional challenge. It would be so great for him to speak to his nurses and doctors.
As Brian and Marla were at his bedside the nurse plugged in an external pacemaker using the wires coming out of his chest. They don't think the nurse was paying attention because Rob got a real jolt and his eyes opened wide and he arched up in pain. Marla and Brian told the nurse that he didn't like that. They also took an EKG and a chest Xray during our visit.
It is not unusual to have a set back but they are concerned because they do not know what caused the reaction he had. They told us if he has a good day he may be able to go to another room that would allow longer visits. I think that would be great because he appreciates having his neck massaged by Melissa and his head rubbed by Marla and his feet massaged by anyone.
Please keep Rob, Marla, and the doctors and nurses in your prayers. We feel the strength of all the prayers that have been offered on our behalf, and we all appreciate your comments and support.
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