Hello!
We just saw Rob. We were able to talk to a few of his doctors. We haven't seen Dr Coselli yet, but he's a busy man. We did talk to Dr Cesar who we know and he usually didn't talk to us, but today he answered a lot of our questions. He's gotten a lot nicer. They are waiting for the ct scan that Mike has that the hospital was supposed to send down with us. He just landed and he is meeting my mom at the baggage claim. Rob should be going in for another ct scan so then they will compare the two scans.
We did have an ENT come in today and look at rob's vocal chords. He said that his right vocal chord is paralized and his left one is trying to make up for the right one. It may be related to the aneurysm that is on his right side that is causing his neck pain. We're hoping it's related because it would be nice to have Rob's cute voice back. I mean manly voice... =) Everything is still in the process of figuring things out, but it has been nice to talk to Doctors that know Marfans.
On a fun note Denise and I went upstairs to Rob's old floor where he spent most of his time here last time. We were able to see nurses we hadn't seen in two years. One nurse I had emailed before we left saying get ready we're coming was able to go and visit Rob this morning. We obviously don't like being away from home, but it has been nice to see familiar faces to make us feel better.
Thank you for all the comments so far. We really appreciate them. It's amazing how comforting this website is.
11 comments:
Marla-your mom gave me this blog site so we could keep updated and it's great to know what's going on so quickly. I just wanted to let you know that you all are in our thoughts and prayers and we hope all goes well and Rob is able to go back home soon.
Take care!
Laura, Keith and Greta Schaller
My heart goes out to all of you.
Thanks for the update--we're checking constantly.
Give Rob our love and save a whole bunch for yourselves. We wish we could be there to help. We're glad the nurses and doctors are being so supportive and have such concern for you. Thanks for taking time to keep us posted. Remember Marla, don't let Rob get jealous!
Uncle Richard
Les told me the news yesterday after he got home from Rutland. My first thought was, "OH CRAP!!!" Kent called just a few minutes ago to say you were in Houston. It sounds as though that is the place to be. It goes without saying that our prayers are with you and if you decide to have a fast, let us know!!! Love to all. The Blades
Thanks for the update. Let us know if there is anything we can do back here for ya! Seriously! Love you guys! Brett & Andrea
Dave just called me and told me what's going on...we're praying for you two and hope you are home soon.
Love,
Karrie, Dave and Ben
Thanks Marla for the update. I am dlued to my computer. I am happy you got some sleep and you guys arrived safely. We love you guys and your in our prayers.
Rob-You need to come home soon, we have another trip to plan. I hope there will be ballons there.
Love you guys
Shannon
Glad you are in Houston where the doctors already know you guys and can get right to the problem (without having to start from the beginning). And you know your way around the hospital and town so hopefully you will be able to get some needed rest. Rob is a trooper! Checking the computer regularly for updates.
Love
Auntie Becky and family
I'm so glad they are taking care of y'all! It is nice to see familiar faces! I am so glad you have family there with you, Marla! Give Rob our warm wishes-- you make sure and get some rest too!!!
I'll be in Dallas as of tomorrow-- I wish Dallas and Houston were closer!!!
Always in my prayers- Ginger
You guys should go to the restaurant above the Aquarium! That place was the best. Remember that? Oh, good times. ^_^
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